Neurodiversity

Neurodiversity is the variation and differences in neurological structure and functioning that exists among all human beings, especially when viewed as being normal and natural, rather than pathological. Neurodiversity is an umbrella term, encompassing all types of neurocognitive differences, as well as “normal” neurocognitive functioning, or neurotypicality

Neurotypical individuals are those who are neurologically typical. Everyone is different, so it is hard to find a brain that is completely “typical”; this term is used more so for comparison sake.  We compare this to neurodivergent. Neurodivergent individuals have brains that function differently from the typical; they may have some form of neurodivergence.  When talking about a group of people, including neurodivergent or neurodivergent and neurotypical individuals, we may describe the group as neurodiverse.

The concept of neurodiversity is not a theory, perspective, belief, or political position; it’s a fact – it’s easy to accept the fact that everyone has different brains, or that there is diversity amongst our brains.  However, not everyone realizes that neurodivergent individuals can and should be accepted as they are, nor do they see the inequities in social dynamics for this marginalized group. For this reason, the Neurodiversity Movement has been growing considerably. The Neurodiversity Movement is a cultural and human rights movement lead by autistic, neurodivergent, and other disabled people with the end goals of acceptance of neurological differences, autism/neurodiversity acceptance, self-determination, autonomy, the end of discrimination, equitable inclusion, and equal opportunity.

Paradigms & Disability Models Explained

 

To help explain some of the foundational underpinnings of the neurodiversity movement, it helps to understand the difference between the Pathology Paradigm & the Neurodiversity Paradigm, as well as the Medical Model of Disability & the Social Model of Disability.

Pathology Paradigm

  • There is only one “right” or “normal” kind of brain.

  • If you brain does not fit into “normal”, there is something wrong with you.

  • The Pathology Paradigm is unfortunately the dominant perspective in today’s society and educational system.

 

The Medical Model of Disability

  • A person is disabled by the way in which their body or mind is deficient or abnormal.

  • Disabled people are a broken variety of human; they need to be fixed, cured, or prevented.  Only neurotypical humans are valid.

  • Disabled people need others to make decisions for them, and are only receivers of help.

Neurodiversity Paradigm

  • Neurodiversity is a natural and valuable form of diversity.

  • There is no one “right” or “normal” kind of brain.

  • The current societal dynamics are not accepting of neurodivergent people.

 

The Social Model of Disability

  • A person is disabled by society’s and their environment’s barriers.

  • Disabled people are a normal variation of human; they should have equal rights and access to society, without being “fixed”.

  • Disabled people are inherently equal, and thus have a right to autonomy and self-determination.

Overall, the pathology paradigm purports that something is wrong with neurodivergent people and they need to be fixed, whereas the neurodiversity paradigm encourages acceptance of all individuals as they are. Similarly, the medical model of disability states that an individual is disabled by their body, whereas the social model of disability states that a person is disabled by their environment and society.

 

When we view neurodivergencies through the neurodiversity paradigm rather than the pathology paradigm, and from the social model standpoint rather than the medical model, it can open up a big shift in our perception of them.  Although this can be applied across neurodiversity, we are going to focus on autism.

Most people are first taught or provided with a definition of autism similar to this one:

Autism is a developmental disorder characterized by difficulty with social interaction and communication, and restrictive & repetitive behaviors.

But what if we use this definition?:

Autism is a developmental disability that affects how an individual experiences and thus interacts with the world around them.

We can adopt the viewpoint that autism is just a difference.  There is nothing wrong with autistic people, they are just different. 

Autism

Autism is a developmental disability that affects how an individual experiences and thus interacts with the world around them.  Autistic people have differences in their sensory system and sensory perception. Due to the difference in input that this causes, the information is then perceived and processed differently, and therefore the output, or how the autistic person thinks, feels, communicates, socializes, moves, and otherwise behaves, is also different.  However, that doesn’t mean that they do these things incorrectly

We call autism a developmental disability because it is present when someone is born and becomes evident as an individual develops in childhood.  Autistic people are born autistic and will be autistic for their entire lives; it is their neurotype.  An autistic person never stops being autistic.  Autism is a disability because the society has not set up the world in a way that it can be easily accessed by autistic people.  The environmental barriers are what cause autistic people to be disabled. 

Due to all these differences that can occur, there is no one way to be autistic.  All autistic individuals experience autism differently.  This is why autism is called a spectrum.  However, no matter how an individual’s autism presents, everyone deserves understanding and acceptance. 

 
 

What Autism is NOT

• Autism is not a disease. It’s also not something that can or should be “cured”.

• Autism does not cause intellectual disability or learning disability.  Autistic children can learn just like all people do when well-supported.

• Autism doesn’t cause deficits in social skills or communication.  It just causes differences in these skills (The Double Empathy Problem & Diversity in Social Intelligence).

• Autism doesn’t cause behavior problems.  If a student is having a perceived behavioral problem, or a meltdown or shutdown, it typically means there is a problem in their environment that needs to be fixed.

 

The Autism Spectrum

Most people think of autism as a linear spectrum, from less autistic to more autistic. However, this is inaccurate. The Autism Spectrum is more like this:

Autistic individuals may vary more or less from neurotypicals in each different area. Because society is not set up for autistic people, they may require more support in each area, based on how much they differ from the “norm”.  Their needs in each area may vary from day to day or from situation to situation.  Because there is so much variety from area to area, we cannot put autistic individuals on a linear spectrum like the first one – they may have high needs in one area but low needs in another, and their needs may change over time. 

For this reason, we don’t use functioning labels.  When describing an autistic individual, it is better to talk about what they are good at and what kinds of accommodations they may need. 

 

Reframing Thoughts & Language

Accepting and appreciating autism involves that we reframe our thoughts about it.  Little by little, the Neurodiversity movement is helping society to reframe how they view autism and other disabilities. 

However, many professionals have only been educated using the medical model of disability, and the pathology paradigm.  Along with autism “charities” that profit off of fear-mongering, and the long history of autism researchers basing their work off false assumptions, we’ve really ended up in a place where  society as a whole views autism as something undesirable.  This stigma makes parents fearful about autism.

This is why we have to work hard to change this prevalent viewpoint.  How we think and talk about autism has a significant impact on how autism is viewed, and thus on autistic people themselves.  Autistic people are speaking out and advocating to change this narrative, and we need to listen to them and reframe our thoughts and language appropriately. 

Identity First Language vs. Person First Language

Anyone that went to school for any healthcare or education-related fields was probably taught the importance of using person-first language.  In the case of autism, someone who uses person-first language would say “person with autism”, so as to remind everyone that the individual is a person and their “disorder” should be considered secondary, like an accessory, something that can be removed, or something that shouldn’t define the individual.  The “with autism”, “has autism”, or “on the autism spectrum” is all language separating autistic people from autism. 

But autism is not something that autistic people need to be separated from. It is not something bad – it is an actual state of being that shapes every part of who we are.  And we should not have to remind everyone that autistic people are in fact people.  For these reasons, the autistic community vastly prefers the use of identity-first language: “autistic person”.  Please use identify-first language to help reduce the stigma surrounding autism.

Puzzle Piece vs. Infinity Sign Symbolism

We have all seen the puzzle piece symbol to represent autism. However, what many people don’t know is the troubling history behind it. The puzzle piece logo was first used to represent autism in 1963 by the National Autistic Society in the UK. The original symbol also had a picture of a crying child inside it, to represent the sadness and burden of autism. Now, many people still think of autistic individuals as being puzzling, having a missing piece, or being an unfinished puzzle - one that needs solved, or cured. For these reasons, the autistic community regards the puzzle piece as a hate symbol.

Instead, the autistic community embraces an infinity sign to represent autism. A gold infinity sign is used specifically for autism and a rainbow infinity sign is used as a representation of neurodivergence. The symbolism of the infinity sign is that the autism spectrum is not linear, and that each autistic individual has endless possibilities and, so often, untapped potential. Please use the infinity sign to represent autism to show your support for autism acceptance.

Co-Occurring Conditions

Some of the differences that are present in some autistic people are actually the result of co-occurring conditions.  That is, separate conditions that occur alongside autism.  These are often lumped in with autism, and are under-diagnosed. 

Some commonly co-occurring conditions are: ADHD, Apraxia/Apraxia of Speech, Dyspraxia, OCD, Anxiety, Intellectual Disability, Learning Disability, Tourette’s Syndrome, Epilepsy, Language Delay, digestive issues, sleep issues, and many more.  Autistic people may also present with things such as synesthesia, hyperlexia, executive dysfunction, alexithymia, or demand avoidance, which are not really diagnosed “disorders” independently, but rather are traits, and can occasionally be seen in non-autistic people as well. 

It’s helpful to remember that although any of these can co-occur with autism, they’re not autism in and of themselves.

 

Autism Strengths & Challenges

Every autistic person is unique and has their own strengths and challenges just like any other person.  However, as we reframe our perspective of autism away from a deficit based model, it is important to recognize that autistic people may possess some certain strengths along with the challenges they may face. Here are some examples:

  • Strengths: Honest, Strong Sense of Justice, Good Memory, Attention to Detail, Ability to Hyperfocus, Highly Empathetic

  • Challenges: Self-Regulation, Executive Dysfunction, Sensory Overload, Fine Motor Skills, Communicating with Allistics, Self-Injurious Behaviors

Although we can see that autistic people have strengths along with their challenges, we still need to remember that autism is a disability.  Because society is set up for neurotypical people, autistic people are disabled by their environmental and the societal barriers. 

For this reason, autistic people often need support.  As a parent, you obviously want to help your child with their challenges and support them however they need it.  There are two ways to approach this:

1.The Pathology Paradigm and the Medical Model of Disability

2.The Neurodiversity Paradigm and the Social Model of Disability